This weekend's update was going to be great, believe me.Tim felt relatively well and even made it to church Sunday morning for the first time in weeks. The IV fluids they gave him at the doctor's office on Friday really set him up well for his weekend Interferon injection and customary oral meds.
After church he was fatigued, but not much else. He slept on and off the rest of the day.
I breathed easier, feeling like we'd turned a corner dealing with the side effects of the Hepatitis C treatment that is supposed to go on until May of 2012. Staying hydrated is key and Tim seems to dehydrate at a more rapid rate than the usual patient. The two IV fluid treatments he had last week really made a difference in how his body reacted to all the meds this week.
Then came this morning.
Oh, Monday, Monday ...can't trust that day.
Charley came to wake me up around 6:40 and he wouldn't leave me alone even after repeated commands.
At the moment I turned my head to check the clock, my phone rang. I missed getting to it, but immediately checked the 'missing calls' feature -- to find that Tim had called me. That was alarming, to put it mildly. I checked our enormous king size bed -- no Tim. Got up, put on my robe and slippers and checked the kitchen -- where he should have been eating breakfast and having his morning meds. No Tim.
Then I heard groaning coming from the TV room and darted in there to see Tim lying on his side on the couch, white as a sheet and groaning continuously. He could barely talk, he was in so much pain.
I didn't even know where to start.
Breathlessly, he told me that he couldn't eat so he hadn't taken the one medication that requires food with it. He'd been up since 5:30 with the pain -- his joints, his muscles, his skin, and, most alarmingly, his kidneys. He was also horribly nauseated again.
After a dose of pain and nausea meds plus some water, he eventually felt well enough to eat two scrambled eggs and to take the missing medication -- he was late with the dose, but it couldn't be helped.
Then I assisted him back to bed, where he is still as I write this. I've been checking on him about every hour, and, except for the ache in his kidneys, he is feeling much, much better. So much so that he felt compelled to inform me that he would be better off sleeping and not being awakened by me to see how he's feeling -- but he said it with a little smile on his face and a loving tweak of my hand.
We have no idea why the change came and why the side effects were so fierce today after such a good weekend. Last week's labs showed no sign of kidney distress, although we do know that he is becoming anemic from the treatment. The doctor will see him tomorrow morning and we will discuss the situation.
For now, though, he is stable and relatively comfortable.
Monday, Monday .....
PS -- the best thing about Facebook is putting out a prayer request and having 30 people respond! What a blessing for both Tim and me!! Thank you, all!